Thanks, Your email address will not be published. I continued playing hockey routinely until I was in my late twenties. Bicuspid Aortic Valve and Bicuspid Aortopathy Nomenclature and For example, his spurt in enlargement happens to coincide with his spurt in growth. My question here is what is the damage I can cause to my heart, mechanical valve, if I keep my heart rate at hi intensity levels? 24 HOUR GYM 2; I have bav with mild dilation of aorta 39mm. Dear Dr. Creswell, Also he told me I can lift weights and do other activities. I had a David Tirone Operation a couple of weeks ago to repair a BAV with aortic dilatation (49mm), and a small leakage. You can contact me on zdenkokosutic@yahoo.com. Arnold Schwarzenegger was born with a bicuspid aortic valve, in which the aortic valve has only two leaflets, instead of the typical three. Related posts: Weve known the risks and my daughter has done well to avoid scrapping for the ball etc. I certainly know runners, cyclists, and triathletes in that circumstance who are active and doing well. The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. I know what theyre saying and after that I know that I have mixed feelings because I feel depressed about not being active like I used to be, but then I feel selfish as I am not being grateful. His doctor recommended he see a pediatric cardiologist within 1-2 weeks but when I called they cant get him in until April 14th. I dont know about the relative effectiveness of various ARBs used for this purpose. As youve mentioned, sometimes it can be useful to visit a cardiologist who has an interest in athletes and their heart problems. Your site has been helpful in provided a sense of peacebut an extra insight would be super encouraging. I was just curious if there any way to know if my valve is affecting my times at all? My questions are: and my valve is working quite well (mild aortic regurgitation). I dont think theres a way to predict the future in this circumstance. 2012; 109:1632-1636. This also assumes that there are no other cardiac issues or medical problems to consider. Your surgeon will be in a good position to understand the exact details of operation that might be relevant when deciding whats safe.. That said, the recommendations dont address WHEN that screening should occur. Is there any research on this? I was only diagnosed with BAV after a routine examination and only because my company has increased in size above a threshold at which all employees are supposed to be subjected to this examination (weird law in Belgium). I wouldnt hesitate to register your concern with your sons doctor about waiting a few weeks. Perhaps that info will give you some basis for discussion with your cardiologist and surgeon regarding the type of valve that is used for your re-replacement. running? Defects can involve the walls or valves of the heart, or they may affect the arteries and veins near the heart. This is thought to occur at a rate of about 0.1% per year in adults. My cardiologist gave me green light for everything except strenuous exercise (used to train for ironman and similar challenges). I dont believe there is any evidence that would help us know if some forms are safer than others. My cardiologist Said to not lift heavy weights. Any guidelines? Many congenital heart defects cause few or no symptoms. I was running 9 to 10 minute miles. The American College of Cardiology (ACC) in conjunction with the American Heart Association (AHA) has issued guidelines for the evaluation, monitoring, and treatment of individuals with BAV: In my opinion, these are useful guidelines for athletes and non-athletes, alike. I knew none of this until a year ago. My question is if my weight&lack of training or my BAV is the cause of difficulty in running. At this time, it is not known whether Arnold received the new valve using a surgical aortic . I cant think like a nurse where hey is concerned. This was 7 months ago. Celebrities with Heart Valve Disease | Wonder Who Qualifies for TAVR | Eligibility and Treatment Guidelines I understand that we are only beginning to learn about the use of ARBs in patients who DO NOT have connective tissue disorders like Marfans syndrome. He would be devastated to never be able to play again. I dont know why this formed as I have had the problem valve replaced many years ago. Hi again Dr. Creswell, The average lifespan for a cow valve or pig valve is about 10 to 15 years, according to the Cleveland Clinic. Is operation needed? What does heavy weights mean? Bicuspid aortic valve - Wikipedia How much worse does it have to get before it should be replaced? I see in this blog that Dr. C noted: Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. When he was 7 we noticed his heart racing at age 11 his bicuspid aortic valve was diagnosed We have been told his valve is at the top of the normal size chart. We see his pediatric cardiologist every 6 months. Unfortunately, I really cant point you to such studies. Hey is a frustrated guy. Nwankwo Kanu (@papilokanu), the Olympic Gold Medalist (Soccer) suffered from Aortic Valve Defect. If echo shows a normal size, thats probably okay. The CVTI is waging war against the leading cause of death among American men and women - heart disease. What is a TAVR? I wouldnt be happy just running I want to be the best that I can be at it. I have had scans and echos for as long as I can remember and have never been on medication nor has this condition stopped me from doing anything I have wanted. Normal function of cardiac valves Thanks for sharing the article about the PEARS technique. is my lack of top end performance indicative of someone with BAV & aortic coarctation? I just thought it was muscle strain., My body cleared the blockage itself, said the game show host, who credited the aspirin he was taking for what he thought was simple muscle pain. Lastly, a human donor valve was inserted into the pulmonary valve position. Thats always the concern with new techniques with limited follow-up data. After finding out about her heart disease, Braxton stopped eating unhealthy foods at night. My cardiologist said that sometimes it remains stable and never grows anymore. 27yr old male. I lifted weights for many years and spent almost all my life in physically demanding jobs. Im 32 years old and didnt expect at all that my aorta would dilate. Then, a Dacron fabric tube can be used to reconstruct the aorta, in a so-called valve-sparing aortic root replacement. My mom [and aunt] passed away [in their 60s from heart disease], and my dad had a heart attack when I was around 10 and he had a triple bypass, the actress told PEOPLE. This visit we were told it could be a few years before anything needs to be done. I have moderate to severe regurgitation and the heart is enlarged as far as I understood. Enlarged ascending aorta 42-43 mm Assuming that 2% of the US population has bicuspid aortic valve disease, that is 6,278,281 people. Willie Moses There is a risk of sudden death in individuals with BAV, probably related most to aortic stenosis or aortic dissection/rupture. Thanks for sharing your experience, Randy. As chemist mostly works in a lab not in the field. Can you tell me what is to much, are push ups or pull ups heavy lifting, is 3 time per week 5 km running with 10-12 km/h pace to much? I did cardio training 3 times a week and weight training twice a week for 60 years. I am big for my age . Bobbie. Options for operation In general, we recommend no weight lifting in patients with BAV if the aortic diameter is greater than 4.0 cm. The free weights are about 10kg and Im not doing any really heavy weights. Seven months ago I had emergency AVR due to a BAV that was severely compromised by endocarditis. In my early 40s I thought that I was getting out of breath more than I should and eventually began to feel weak or nervous during a game, but only on Sunday. The lines are the edges of the valve leaflets that open and close to let blood through. 1) What kind of sports are recommend to me according to my situation? Oh, plenty. The problem is I have developed an aneurysm on my ascending aorta of 44mm. Based on the information Ive provided, I would greatly appreciate your advice and opinion on the matter. Anyway, I will continue with running as much as I can, and now I have an excuse for my lousy performance. Learn more about Baldwin Publishing Inc.editorial policy,privacy policy, ADA compliance andsponsorship policy. From your reading, or even just here at the blog, youll know that its not an unusual story. Nonetheless, I think theres considerable confusion about this condition, in terms of diagnosis, implications for the athlete, and its treatment. Congenital bicuspid aortic valve after age 20 - PubMed Athletes will ask when they can return to their sports. The procedure has the potential to bring the aorta to 4.3/4.4 and avoid further enlargement. To me, cardiologists are not sports people and air on being absolutely over cautious. Although we still dont have very long term results tracked (15+ years), in the short term the results seem to be much superior to regular bentall de bono option (and its variations). I have normal aortic size, mildly dilated aortic sinus (39 cm), and trace aortic regurg. However, his ascending aorta has been enlarging: 11/27/13 31 mm (echo), 6/10/15 39 mm (echo), 7/8/16 41 mm MRI). I would like to know more about your recovery timeline since you are so much further out from surgery than I amfor instance; how long before you could do long rides again; when could you do tempo efforts; start high heart rate intervals; and finally race again? Periodic re-evaluation with echocardiogram and/or CT scanning is used for most patients in this circumstance. No LV chamber chamber dialiation, normal LV wall thickness, good LC systolic function, No regional LV wall motion abnormality. Also I seemed to get quite sweaty the following hours after a hard training session. A bicuspid aortic valve is a congenital heart defect that affects the one-way valve between your heart and your aorta, known as the aortic valve. I have found in my case( an athlete with bav)the typical response from doctors is, thats life, you cant do it anymore, be grateful for what you have. Pathology. Diagnosed at 5 with BAV, checked yearly, and okayed to play soccer. I think we would expect less enlargement over time with stopping strenuous exercise. Thank you very much for the answer! And, if so, how did things go? no symptoms yet please help. Like you, I have been frustrated by the lack of experience and information that the cardiology community has for folks like us, although it is encouraging to read everyones posts here and see that we are not alone. Frankly Im worrying quite a bit about thisand I feel like its causing additional chest pain and shoulder pain. Always best to heed the advice of your doctor(s) who will be in the best position to offer advice about safe forms of exercise. Women are 50 percent more likely to be given a wrong diagnosis after a heart attack and are at a greater risk of dying within a year of a heart attack than men. Aortic valve replacement is recommended for nearly all patients with severe valve stenosis (valve opening less than 1.0 cm2), Aortic valve replacement is recommended for patients with severe valve regurgitation if there are symptoms due to the regurgitation (eg, shortness of breath with exertion) or evidence that the heart is suffering because of the regurgitation (enlargement of the left ventricle), Repair or replacement of the beginning portion of the aorta is recommended if there is enlargement of the aorta to greater than 5.0 cm. . People can live normal lives with Congenital Heart Defects. Still no stenosis or regurgitation, aorta now 35 mm, he is 6 ft, 150 pounds. Enlargement of the left ventricle can be an indication that the heart suffers from the aortic regurgitation, even if the regurgitation doesnt produce symptoms like shortness of breath. I am mostly a runner, 4 times a week, with 10 21 km races. Perhaps a cardiac surgeon would be able to provide even more detailed information about things like various options for operation that might be applicable in your case as well as thoughts about when operation should be performed. Perhaps you could print out the diagram, take it with you to the cardiologist, and ask him/her to circle the forms of exercise that would be safe in your case. My heart seems to heal, so that speaks well for my future.. All Rights Reserved. A CT scan made the diagnosis. Athletes with BAV who have no stenosis or regurgitation of the aortic valve AND have no enlargement of the nearby aorta may participate fully in their sports. Consult your doctor to see if there are any restrictions that would be specific to your case. He was just diagnosed with functional BAV due to partial stuck together of two leaflets (out of three, as far as I understand, they are equal). The surgery involved a replacement heart valve made from a transplanted tissue sourced from his pulmonic valve. Ordinarily, we reserve operation for patients with severe aortic regurgitation who have some decrement in the LV function. Im a 44 year old male. Bicuspid aortic valve (BAV) is the most frequent congenital cardiac defect, and affects 0.5-2% of live births. My AVG HR on a daily basis is between 61-64 (that includes a workout where it exceeds 150 at times), I have no intentions of racing this marathon, simply crossing the FINISH line, and my heart rate will not exceed 150 I will walk when/if necessary. But for those WITH such problems, we do recommend curtailing either static or dynamic activities, or both. The typical symptoms are fatigue or shortness of breath, particularly with exertion. My performance as a cyclistgiven my ageputs me in the elite category, although with the stenosis I am experiencing a definite decline in performance. Dear Doctor, Im keeping my heart rate below 150, 160 at most but just for short period of time. Danny. This has caused me a great deal of anxiety because I feel like I am being told to act like an old man before my time. Its probably not possible to have too much information as you think about your situation. Dr. Larry, thank you very much for your blog! First, Id encourage you to follow your doctors advice. The pitfall, though, is that our native aortic valve is itself very efficient. Well, as it happens, the Cleveland Clinic has been recently rated the top heart hospital in the nation, and the number two hospital overall. (Or do I just need to train even harder??). In your experience, can patients with BAV go a lifetime without having AVR? Aortic stenosis has been reported to occur in as many as 72 percent of adults with a congenital bicuspid aortic valve, with peak incidence occurring in the 5th and 6th decades of life. Check out Anthony DiLemmes blog, Anthonys Heart Valve Replacement Saga. I was wondering if you could give your opinion on my scenario. Ive got my results from my recent echo and a lot of normals on there but main things were regurgitation and stenosis were mild with the aorta measuring about 33mm. Open heart surgery is sometimes the best option, but it is not always the only option. Normal biventricular size and function, no scar. 2) He can lead a normal life & can continue his training with regular echocardiography control (once in a year). E. G. I could bench 50lbs with no need to strain and hold my breath, which wouldnt result in a massive spike in blood pressure, but if I tried to bicep curl 50lbs it would do. Ive starting going to the gym again and doing cardio with weights to tone up. Yes, I am aware of the work by Dr. Dietz. If I ever need surgery to replace my root , I understand that there is an element of complexity for such surgery, but after surgery, is life expectancy for individuals assumed to be shortened at all ? These operations can sometimes enjoy the benefits of each of the operations you mentioned.and avoid done of the down sides. When first diagnosed with BAV I just nodded and smiled it was only the following day that reality hit home and I thought of all of the questions that I would have liked to have asked the cardiologist! Mayo Clinic Q and A: Treatment and management of bicuspid aortic valve I took it up 7 years ago. I am a competitive cyclist, neither the Cardio or my Doctor said I should not be racing bikes anymore, does that sound reasonable to you, my doc did say to monitor the aortic root size yearly. Best Valentine's Day Restaurant Specials 2023. She's currently spreading the word about the AHA's partnership with CVS' MinuteClinics for free heart health screenings every Thursday in February. The aortic valve lies between the heart and the aorta, the main artery . She partnered with the American Heart Association to encourage others to get CPR training that could potentially be life-saving. For athletes who return to sport after AVR and aortic replacement, its important to settle on whats safe with your doctor(s) ahead of time. The Ross procedure borrows your sons pulmonary valve and uses it to replace his aortic valve and aorta. CT or MRI may be more accurate. I have repeatedly asked each follow up, if continued marathon training is OK. Im always told it is fine with the old adage of listening to your body. Sometimes it comes even when not exercising. Together, you should be able to settle on what sports activities will be safe based on those facts. How severe are the problems? Also, my next appointment is, unfortunately the week after my next marathon (which I will be pacing and not racing). I have some issues with a dull pain right below my left breast that seems to come more often with a poor dietbut just doesnt seem like it could me esophagus related?
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